Team Racy Knickers hit the road!

Fundraisers Nicole Taylor, Sarah Kinloch and Carolyn McCall are preparing to embark on the adventure of a lifetime this September.

The girls, who have several friends with CF, will be driving from Calais to Split in Croatia in an organised car rally – a journey covering over 2000 kilometres.

Nicole said "This may not be an unusual leisure activity for some people. But for us 3 females who know very little about cars, this is a huge personal challenge to not only get to the finish line in Split but also get our car ready for the starting line!

There's also one other 'small' issue - the rules of the rally state that you must buy a car for under £150. So thankfully, we managed to source one from a friend for the grand sum of £0.43 - and a case of beer!"

You can sponsor the team here and follow their adventures on their blog

Southampton lads take on 980 mile cycle for the CF Trust

Southampton man Dan Doherty will be raising vital funds for the Cystic Fibrosis Trust this August by cycling from John O’Groats to Lands End.

29 year old Dan, who works for the engineering consultancy Mott MacDonald as an acoustic engineer, has chosen to raise money for the Cystic Fibrosis Trust because his younger brother Ben died of CF in 2008. He is taking part with three friends, Craig Bremner who also works for Mott MacDonald and his university friend Thomas Spenkuch. The team will cycle 100 miles a day for 10 days and will be riding without a support vehicle. Dan said “We are all avid cyclists and have been training but we’ve never cycled anything like the distance we’ll be covering during the challenge. I lost my brother, Ben, to Cystic Fibrosis when he was just 23 years old. We’re hoping to raise money to help fund research into a cure as well as treatment of the symptoms so that CF sufferers have brighter prospects and a longer life expectancy.”

The team leaves John O’ Groats on Sunday 22 August and you can sponsor them at www.justgiving.com/JoGLEforCF

Andrew walks Coast to Coast for the CF Trust

Congratulations to Andrew Horner who recently walked across northern England following Wainwright's Coast to Coast route - 12 days, 190 miles and three National Parks.

Andrew walked in memory of his friend Richard Grannell and has raised £1,250 for the CF Trust. You can find out more on his justgiving page.

Bon voyage to some fundraising friends

A sad farewell or perhaps au revoir to Michael Crouch and Tori Milner who are off on a round the world trip. Mike and Tori are friends of Catherine and Julian Sheahan who have 7 year old twins with CF. From when the children where first diagnosed Mike and Tori pledged to help in any way that they could and they have been great supporters of the CF Trust over the years.

Last year Michael completed Hadrian’s Wall on crutches despite being told by a physio that he was mad to do it. Not only did he finish it with energy and only one crutch, mastering the rugged pathways like a mountain goat, he did his part in raising nearly £20k for the CF Trust! Michael also is one of the top purchasers of the CF Trust's Mr Potato Head pin badges, as he was forced to buy one everytime he was late for a meeting with Julian. Needless to say, he has quite a collection!

To mark their farewell, before embarking on a round the world trip, the couple held a farewell party in aid of the Trust. This involved bowling, dressing up and karaoke, raising a further few thousand pounds. They have been dear friends and a real asset to the Trust, and will be sorely missed.

Sam takes Great Strides for the CF Trust

Well done to 11 year old Sam Haythornthwaite and family who took part in a sponsored walk at Itchen Valley Country Park in Hampshire to raise money for us.

Sam said: "I arrived on a beautiful day at the park with my Mum, Dad, sister and my dog Charlie. After bickering about where we were on the map, we set off to do the 5 kilometres through the country park. The walk took us through various trails past huge totem poles and thick forests. As we were the only family on the walk we were in no rush and eventually finished in 1 hour 40 minutes."

"We were amazed when we found out that altogether we had raised a total of £505 for the CF Trust. I'm very proud of raising this much. It means a lot to me because I have CF and it feels good because I know I've played a small part in helping to find a cure."

Thank you Sam and well done!

Hair today gone tomorrow! (sorry)

A big thank you and well done to Andy Kenny from the West Midlands who cut off all his hair to raise money for us! He's still counting his sponsorship money but it looks as though he's raised around £250 which is great. Well done Andy!

Celebs on Twitter support CF awareness

Fundraiser and mum of two boys with CF Lorraine Barnes has been working hard to raise awareness of CF through her special 'Get it off your chest' T-shirts. She's been tweeting lots of celebs to ask them to wear her t-shirts and the results have been great - Simon Pegg, Ben Shephard, Ali Bastian, Duncan Bannatyne and Mark Hamill aka Luke Skywalker have all lent their support.

Actress Kathryn Drysdale has also backed the campaign by taking the T-shirt with her to celeb parties and last night got Frank Lampard and Boris Becker to pose for her!

Special thanks to mum and fundraiser Alison Dillon who has also been recruiting celebs to wear t-shirts.

You can view the celebs who've sported the t-shirt so far on our facebook gallery and you can also follow Lorraine and the CF Trust on Twitter.